Are you listening?
Many of you know I have been sick for a long time. Over the past few years, I’ve had a handful of diagnosis, some have stuck, some have changed. Late last Aug I got hit with something else, something called Meniere’s that causes me vertigo and daily dizziness. It is also taking my hearing in my left ear. None of the treatments has helped. In fact, I was slowly getting sicker over the months since. Toward the end of this past Dec, things began taking a worse turn and over the past several weeks I have had some really weird and debilitating symptoms crop up. A couple of weeks ago I tested positive on 2 different labs for an autoimmune disease. Yesterday, my husband and I had a very long appointment with the specialist, after which they took 11 vials of blood for further testing and continued monitoring. I for sure have an autoimmune called Sjorgrens, apparently so bad it is impacting multiple systems of mine. For instance, my hands keep swelling up badly and are very painful (hurts to type). My hips and legs hurt badly as well. My vision gets suddenly very blurry and then not throughout every day. It is attacking my salivary glands and eyes, but also my joints and muscles. On top of this, it is possible that I may also have Lupus, which is hard to diagnose in those who do not have the butterfly rash. I have to start seeing the Rheumatologist regularly and have a standing order for blood work at the lab every other month to monitor me. Saturday, I have to start taking some medications that are gonna f*** with me for a while.
Anyhow, that’s the basic shit going on right now.